His father announced the news in a heartfelt statement on the POLG Foundation’s website, an organization Frederik himself founded to raise awareness and seek a cure for the disease.
Credit: Grand Ducal Family of Luxembourg/Instagram
Born with this challenging condition, Frederik’s symptoms became more pronounced around the age of 14, leading to a formal diagnosis. POLG Mitochondrial disease affects the body’s ability to produce energy at the cellular level, resulting in progressive organ dysfunction.
Despite these challenges, Frederik remained positive and humorous, using his experience to establish the POLG Foundation, aiming to find treatments and a cure.
In his final days, Frederik’s health declined significantly. On Rare Disease Day, February 28, he gathered his family to bid them farewell.
Despite his weakened state, he found the strength to share personal messages with each family member, even managing to share a joke, showcasing his enduring spirit.
Prince Robert expressed profound pride in his son’s resilience and accomplishments.
He recalled Frederik’s last question to him: “Papa, are you proud of me?” This poignant moment highlighted Frederik’s desire for reassurance about his contributions and legacy.
Frederik’s life, though short, was marked by a zest for life and a commitment to making a difference. He had a “lust for life” that helped him overcome the physical and mental challenges and surround himself with a wealth of friends.
The POLG Foundation, established by Frederik, will continue its mission to support research and raise awareness about POLG Mitochondrial disease. This endeavor stands as a testament to Frederik’s dedication to others facing similar challenges.
Frederik’s passing has deeply affected those who knew him. His family, while mourning their loss, finds comfort in the memories of his strength, humor, and unwavering spirit. They plan to honor his legacy by continuing the work he was passionate about, ensuring that his efforts to combat POLG disease endure.
In remembering Prince Frederik, the words of his father resonate: “He is my superhero.” This sentiment encapsulates the admiration and love felt by his family and all who were touched by his life.
